Tag: IEP

To Hear What Your Child Hears

This weekend was one of growth, acceptance, and most of all fun.  Saturday morning our family woke up early and drove an hour and a half to a family event put on by Minnesota Hands and Voices www.mnhandsandvoices.org  This was a first for our family, frankly I was nervous as could be.  I didn’t think we would fit in.  Henry has a mild hearing loss and we were invited to this event.  I just thought it would be to mild of a loss and we really didn’t belong but there was a tug at our hearts to go.  Chad and I were in agreement that we should go to this event as a family.  The kids on the other hand were soo excited to get to the YMCA where this event was going to take place.  Running around and going swimming is an OK day to most kids.

This day was eye opening to me.  I had to wait over a day to write this post just to let it all sink in and settle.  There were about 6 families there and the kids were all great and became instant friends.  The hearing loss levels ranged from mild to profound.  I guess we did belong.  There was such a feeling of acceptance, I have trouble getting the feeling into words.  Everyone there understood hearing loss.  They understood that the fan kicking in is going to prevent you from getting the information presented.  They all understood that you need to face each other to get the full meaning of the conversation.  It was just a feeling that there were no differences, there was such ease of conversation all day long.  I wasn’t the only parent to a child there that had hearing aids.  There was just a sigh of relief if that makes sense.

We had a session on educational IEP’s which was very interesting.  That always seems to be a sticky subject of what to put in the IEP and what should be in there and what the school wants to put in there is not always on the same page.  We got a lot of good information and eager to pass it on to friends.  The session that made the most impact on all of us was our second session, hearing simulations.  There is no perfect simulation that will show exactly how someone hears but what is out there is still powerful.  Each child present had their audiograms put into the program and we listened to a voice, like a teachers voice.  Now add some classroom noise and listen to normal hearing and then how your child hears, Powerful.  I know how I hear but hearing how your child hears still hits you.  Sitting at a mild loss doesn’t mean it is a mild difference.  You had to strain to hear the teachers voice and not just sit and passively listen you have to concentrate and concentrate hard.  No wonder this poor kid comes home and meltdowns.  He has to work so hard to just get through the day.  I looked over at my husband who I don’t think really understood what it is like.  He had his head down and I saw a tear in his eye.  It was a powerful model that I wish teachers, family and peers could hear.

hearing simulation

The kids had a wonderful day!! They played BINGO, basketball, minute to win it games.  The kids even made the decision to all eat lunch together, really nice to see.  We ended the day with some of them going swimming together.  Just a great day with new friends and new insights.  My daughter even wants to learn ASL now to try and converse with a couple of the kids that use sign on her own next time instead of the interpreter doing it all for her.

greta in the pool

To hear what your child hears is a powerful moment and one I won’t forget.

The Day of my Son

So today was the day of my son from morning till night.  The day started out today with an IEP meeting for my son.  I am so happy with the progress Henry has made this year so far.  We still have some issues but most of the conversation today was the positives.  So we need to work on writing and reading so basically letters.  He is wonderful at numbers and the testing really showed that strength.  When Henry was very young he told me numbers lived in his tummy.  I think those numbers are coming out.  He loves math, patterns, and counting everything.  The big needs are his sensory needs.  I was told by each person that tested my son that his shirt, hand, or a chewy was in his mouth at all times.  I was also told he was constant movement.  Well that was no shock to me I live with him.  Another concern brought up was his hearing.  He has tested the past couple years at borderline hearing loss.  We had a deaf/Hard of Hearing teacher at the meeting so she explained what he heard and how.  She also explained how this hindered learning even having borderline hearing loss.  So the question I was dreading came out.  Is there any family history of hearing loss with Henry.  Well I had to let my secret out.  I don’t know why I didn’t want to say it but I had to say YES I have hearing loss at a moderate loss.  I know what it is like to not be able to hear a conversation or concentrate so hard on someone talking it is physically and mentally exhausting. So everyone together is going to really watch him and make sure he can get the best out of his education.  It was a good meeting and I think it will all be good.

Tonight was Henry’s orange belt test for TaeKwonDo.  He didn’t pass tonight but did great.  He sat at attention so well!! He even broke his first board.  He did great and only needs to pass one item on Wednesday.  I was very proud of all the kids there tonight.

It has been a day of being proud of my little man.  I am sure there will be many more of these days-today was a good one.  2013-12-16 18.52.53

Christmas Program, TaeKwonDo test, and IEP’s Oh My

The week before Christmas is always busy it is crunch time.  It is the week where you realize how much you didn’t get done getting to this point.  This year I have the presents bought but are any wrapped…NOPE.  This week will be a busy one. Tonight will be a night for memories. We have our Sunday School Christmas Program.  Both Kids now their parts and hope they will be nice and loud up there tonight so I can hear their sweet voices.  There is so much work that goes into the program.  Getting the kids organized to get up on stage is a job in it’s own.  It will be cute and special and I am looking forward to it.  

Tomorrow morning is a day that brings worry to the pit of my stomach.  We just had a bunch of testing for my son at school and tomorrow is the results and the new plan.  The dreaded IEP meeting.  There are so many people to this meeting I am a tad nervous and thinking this is overkill.  I don’t know if they will all be there but it seems like a lot to me.  So for my 5 year old it is the teacher, school psychologist, OT(has OT 3 times a week), SLP, PyEd teacher, Testing cordinator, principle, Deaf and hard of hearing teacher (Henry has borderline hearing loss), and the early childhood special education teacher.  WOW that is a lot of people.  I am a tad nervous what they will all say.  He is doing well at school with a para and the Title 1 teacher so I don’t know what I will hear.  I guess the fear of the unknown.  

Tomorrow night is my son’s orange belt test for TaeKwonDo. A time to be proud and take lots of pictures.  Greta my black belt daughter will be helping with the test. She takes her job very seriously helping these younger kids.  Crossing fingers we have an orange belt kid at Christmas.  

The week just continues to be busy, it is the time of year.  This week is one for the kids- programs, tests, meetings OH MY.  Just hope to find sometime in the week to find the time to get what I need to get done.  The days are counting down to Christmas and FAST.  

Hope you can all find the time to get your Holiday things done but find the time to make memories and savor those little times.