Tag: SPD

MY HEART

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This past weekend was one of pride.  I love watching my kids showing respect with the judges, and making new friends at a TaeKwonDo tournament.  They both did great!! They came home with 18 inch trophy’s and Greta came home with the Beast Trophy for breaking.  I think that trophy is a prized possession now.  There were only 4 given away in each age group and she got 2nd place.  I don’t know if I have seen a bigger grin.  The above picture is Henry in blue.  He ended up getting 1st place in Sparring.  Pretty proud of my little guy.  

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Greta is in blue.  Wow look how high her leg is on this head kick.  She amazes me everyday with what she can do.  She ended up getting 2nd in Sparring.  She did great and is learning the higher she gets the competition gets harder also.  

As much as kids can drive us nuts and mess our house up to the point of the Horder producers come knocking they are amazing.  They are amazing of what they can accomplish.  When Greta was little she couldn’t walk or even balance on her own.  She had the littlest little foot braces and PT.  There was a time when the therapist wasn’t sure she would ever walk normally.  Now she is a 2nd degree jr black belt.  I am amazed when I think back at that time.  Henry couldn’t enter a room with people in it without a complete meltdown.  I thought of both of these things as we were driving out to South Dakota this weekend for both of our children to compete in a physical sport that will be loud, with a lot of people.  God works miracles and I have two of them.  

Small Victories

When you have a child that has SPD, Sensory Processing Disorder, you learn to look at the world a different way.  My son Henry has SPD.  We are making great strides in some areas, and there are other areas which are a battle for him which makes a battle for the family.  

To have a child that screams like he is getting beat when water from a shower or the wind hits him in the face.  These are two things that hurt him physically to the core.  I get frustrated over this water thing.  Here is my son that will jump off the diving board with no assistance in 9 feet of water over and over and over but hearing the shower running brings on a full panic attack with hives.  Food is our big stumbling block in our home.  Everything is yucky, everything smells yucky and most of the times my son won’t even be in the kitchen with us when we eat.  I feel so bad for him and I know the smell of bread, or a roast makes him feel physically ill.  Taco’s are his favorite all around.  He loves taco meat and he loves salsa will eat it by the gallon.  Taco night is a great night in our house.  No gagging and no crying.  My son also craves sensory input.  What is that you ask? He will bounce of the couch, crash into walls, crash into me- anything to get that deep pressure input his body is craving.  He loves to spin and spin and spin till his poor mother is feeling like she just got off a tilt a whirl ride.  He will hit his forehead with his hand, or a toy, or even his taekwondo belt.  He is craving that pressure.  

With the sensory challenges we have in our home last night was a night of small victories.  It was just Henry and mom last night and his hair was getting a little unruly.  It actually looked like he was growing horns on the top of his head.  Not a good look.  Now cutting hair is on the same order as a shower.  We really can’t go to a shop to have it done it takes to many people to calm him down and it is just to much on my nerves also.  So I cut his hair at home.  This is usually my husband holding Henry and Greta trying to calm him down as I quickly use the clippers to cut his hair.  Last night I got the crazy idea I would do this alone.  So Henry agreed and he sat so good and he listened to Frozen music on his iPod.  He did WONDERFUL.  His haircut looks good and there wasn’t one tear shed by either of us!!!  I then explained I needed to get the hair off his neck and back but I would have him stand in the tub and I would just pour the water on him.  That got a few tears while doing it but no major meltdown.  We ended up celebrating by a great big bubble bath with Frozen music blaring through the house.  He was happy, clean and a new haircut.  Now that is major success in my book. 

When you have a child that looks at the world through different eyes you need to train your brain and eyes to look to see things a little different also.  It might not make sense to you, a neighbor or the woman casting a frown your way at the store but it is your boy and you will protect him and nurture him anyway you know how.  

SLEEP

Ever have a craving? Maybe chocolate, or soda or if pregnant pickles and ice cream….I am craving SLEEP.  It has been a couple weeks of maybe a couple hours of sleep a night if lucky.  I fall asleep for an hour and then wide awake.  Sometimes I wish I was back to a small child and I could take a nap.  Just doesn’t happen.  Having a child with SPD can mean sleep issues and that is the case with my son. He wonders the house at night sleeps for an hour or so and then up for the rest of the night.  It is hard on this momma worrying what is he doing, what is he up to. Now I have my own mind racing at 100mph at night.  Do you know the stupid thing you can worry about at night…it is stupid stuff.  Going from normal hearing or near normal to needing hearing aids in a 2 week period can cause lots of thinking and reflecting.  My mind goes to why, can people notice, will it get worse. I know it could be a lot worse but in the middle of the night I am sorry you think about yourself, or at least I do.  As I drink my sleepy time tea tonight I pray that these worries will subside and my mind can be like my SPD son and just crash.  He gets to Thursday night each week and just crashes. I need a Thursday night.  To all the other SPD moms out there they know that days can be hard and nights can be harder. We all need that Thursday night once and a while.